75% to 90% of children with cancer have the hope of being
cured from their disease. Many children with pediatric
brain cancer are not so fortunate. You may have to
face the decision of when quality of life versus quantity of
life takes priority. This is a very personal decision
between the child and the child's parents. No one else
can make this decision, and no one can advise you on what
you should do and how you should handle the decision you
make.Treatment for pediatric brain cancer often comes
with debilitating side effects. Damage can occur with
various parts of the brain that control motor coordination
and movement, nerve centers, cognitive thinking, hearing,
seeing and so much more. Paralysis of parts of the
body is also a risk in treatment for brain cancer.
Children with tumors in the spinal cord often go through
radiation therapy, which can cause damage to the lungs.
Know the possible risks and damage and future of your child
when making decisions about medical treatment. If your
child is at a maturity level to help in the decision making
process, give him or her that opportunity to be involved.
KMF Co-founder, Stephanie Miller writes, "We gave the
decision to Kyla. We could have traveled and taken her
somewhere else, but with glioblastoma being such a tough
cancer to fight we knew that our choices were limited and
with no guarantee of success. Kyla decided that she
just didn't want to see anymore doctors, didn't want to get
poked at anymore, didn't want to take anymore pills or eat a
special diet. And together we all knew that if Kyla
couldn't be the person that she was in mind and spirit that
heaven was a much better place for her to be."
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