Kyla Miller Foundation

Joining in the fight to end pediatric brain cancer...
P.O. Box 712     Dillsburg, Pennsylvania  17019
(717) 259-9742     info@kylamillerfoundation.org 

          Patient Support During Treatment
Treatment for pediatric brain cancer often comes with side effects that impair a child physically and/or cognitively, depending on the type and location of the tumor.  Your child's medical team is your first point of contact when determining what type of support your child will need moving forward.

Some types of treatment may require your child to remain in the hospital for a time.  During their stay (and if they are feeling up to it), a Child Life team can be engaged to help entertain the patient.  Most children's hospitals also equip rooms with televisions, DVD players and video game consoles.

Children with cancer that are treated at Penn State Children's Hospital have the opportunity to join a program called THON, where an organization from Penn State University can adopt your family.  These students develop a unique relationship with the patient and family, and members from the organization will often travels to Hershey and the surrounding area to spend time with the family.

Your child may also need other types of support, such as physical and mental therapy.  Your child's medical team will help you line up the appropriate teams for this.

Learning Support - What do you do when your child's cognitive skills have been affected by treatment?  Pennsylvania state law requires public schools to provide the appropriate resources for your child to learn.  You will need to engage your child's school's learning support team to put together the appropriate learning program so that your child will not be left behind.
 

Types of Brain Tumors
Diagnosis
Treatment
Support During Treatment
   Parent Support
   Patient Support
   Sibling Support
   Financial Support
Life After Treatment
Quality versus Quantity of Life
End of Life Issues
Resources (Links)
Open Clinical Trials
     

Kyla Miller Foundation is a Pennsylvania state registered non-profit organization joining in the fight to end pediatric brain cancer. KMF is named lovingly after
Kyla LeeAnne Miller, a loving and vibrant child who succumbed to glioblastoma multiforme just two days shy of her tenth birthday. 
Copyright 2008 - 2011 Kyla Miller Foundation.  All rights reserved.  This site hosted by Stamm Solutions.